Hirschsprung's Disease

Hirschsprung's disease is a fairly rare condition that affects one in every five thousand babies born, however I have still managed to meet two very local children who have been diagnosed with hirschsprung's disease, one when he was born like my little boy, and the other was diagnosed much later, when she was over two, which then comes with it's own set of problems. Hirschsprung's disease affects the bowel, and means that the nerves which allow the child to poo are not present. Obviously this means that the child starts to become unwell, and gets a big tummy (distended abdomen) they might vomit (sometimes green or rown which is the bile or sometimes even faeces) and won't eat. This affect children in varying degrees, sometimes meaning they need surgery straight away, and other times meaning the condition is managed with laxitives until it is diagnosed, and then they normally have the operation. There are two different types, long segment and short segment Hirschsprung's disease, and most children are affected by short segment, which means it is only the lower part of the bowel which doesn't have the nerves, rather than the majority or all of the bowel. Our son was born with short segment hirschsprung's disease, which he initially had an operation for. This operation removes the part of the bowel which does not have any nerves in it (the one our son had was called a pull through operation, although I think there are different techniques). This would normally allow the child to start going to the toilet normally, although because some of the large bowel has been removed, which normally soaks up water from the poo, it can be almost runny when they first start going, and it can give them very nasty nappy rash! I really didn't mean this to be a long explanation of Hirschsprung's but I thought it might be useful as not many people have heard of it. Also, when our son was first diagnosed I looked everywhere for a reader friendly description, that wasn't full of medical Jargon, and wasn't full of awful stories, so I guess this could be it. Have I missed anything?